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Helena Bonham Carter: New Patron of Action Duchenne

Response Source posted a press release announcing Helena Bonham Carter as a new patron of Action Duchenne. The actress who portrayed “Bellatrix Lestrange” in Order of the Phoenix has been added to a list of famous patrons who provide comfort and support to people who are affected by Duchenne Muscular Dystrophy.

Helena Bonham-Carter said: “As a patron of Action Duchenne, I would like to urge as many people as possible to find out about the work of the charity and the devastating effects of Duchenne Muscular Dystrophy. Treatments and a cure seem tantalisingly close but they will not appear without further support and funding. Please join Action Duchenne in helping to make muscle wasting history.”

Click here to read more.

Thanks helena-world.com

Duchenne Muscular Dystrophy has no cure. It is caused by mutations in the dystrophin gene which prevent correct readings of the genetic code. This results in no dystrophin, an essential muscle protein, to be produced in the body. No dystrophin allows a progressive wasting of the muscle, limiting mobility in teenage patients (boys and men). Premature deaths happen from respiratory or cardiac problems since the heart muscle is affected by the genetic defect.

Duchenne affects 2,500 people in the UK and about 40,000 people worldwide.

Nick Catlin, CEO of Action Duchenne said; “Helena Bonham Carter and our other supporters provide an incredible boost to all Duchenne sufferers and their families. It is uplifting that people whose lives are untouched by this disease are still able to demonstrate compassion and support for families that are affected by this devastating, life-limiting condition. We are very grateful to all our patrons and the support that they give – our fundraising efforts will continue to be a focus to find a cure for this disease.”

Click here for more information about the charity and the disease.

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